http://malodorousmesses.com/2008/08/13/the-eye-thing/ Mon, 12 Sep 2011 02:56:43 +0000 hourly 1 http://wordpress.com/ http://malodorousmesses.com/2008/08/13/the-eye-thing/#comment-435 Fri, 15 Aug 2008 03:00:03 +0000 http://singleandpaperpregnant.wordpress.com/?p=466#comment-435 I so agree. I think that sometimes people tell me that what I’m doing (parenting a child with a possibly terminal illness) is “heroic” because they want to see this all as superhuman. Surely they wouldn’t have to be in my shoes, since only someone extraordinary would have to go through this.

]]> http://malodorousmesses.com/2008/08/13/the-eye-thing/#comment-429 Thu, 14 Aug 2008 02:56:48 +0000 http://singleandpaperpregnant.wordpress.com/?p=466#comment-429 WOW!I am very impressed with your mindset in dealing with Oscar’s “eye thing”. I can only tell you from my experience with Rebekah-Grace and her “special needs” that I would not have missed this experience for the world. Even with the 4 additional months of down time from work (NOT including the month spent in Hanoi fighting our gov’t to bring her home to begin surgeries/treatment!!), the weekly battles with the insurance company, the travel back and forth from AL to U of Iowa Children’s Hospital, 3 months of her in a body cast and MANY nights w/out sleep because of her pain and discomfort….it only brought us closer! I am the one she trusts for comfort, safety and security. Although I knew of her medical needs when I accepted the referral, the reality of dealing with treatment and recovery was more than I could have anticipated…but so is the feeling of holding her in my arms and rocking her to sleep each night and seeing her sweet smile every morning when she wakes up! I think God protects us from things which He knows would completely overwhelm us and cause us to say, “Well, I certainly don’t have the time to deal with that!” And as you said in your post…..I would have missed out on the best thing to ever happen to me….and the love of my life!!

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